Nikki George

Nikki George

Officer

Nikki is the mother to Millie, who was diagnosed with Ogden Syndrome in April 2020 when she was 13 months old. Millie inspired a new-found love of Science and Genetics in Nikki and a passion for advancing therapeutic interventions targeting the mechanism of disease in patients with rare syndromes.  After losing her mother, who received a diagnosis of bulbar onset ALS five months after Millie's diagnosis, Nikki lives by the mantra “Incurable is unacceptable.”