We are YOUR nonprofit supporting Ogden Syndrome.
Thank you for visiting the Ogden C.A.R.E.S. website.
Please use the form below to let us know how we can help or to submit any questions, comments, or suggestions, and someone will contact you back as soon as possible.
How Else Can You Get Involved?
Ogden Syndrome and NAA10-Related Syndrome are BOTH appropriate names and can be used together or interchangeably.
Ogden Syndrome is a genetic condition that is caused by an x-linked chromosomal abnormality.
Raising awareness is key in the rare disease community.
Use your social media accounts as a way to get the word out! When you post pictures of your Ogden kiddo(s), be sure to mention Ogden C.A.R.E.S. in your text, use the hashtags #ogdencares and #ogdensyndrome, and/or tag us @ogdencares.
Support a good cause, contribute financially to Ogden C.A.R.E.S, a non-profit organization to support individuals and families affected by Ogden Syndrome
Participating in Rare Disease days and weeks
is a fun and fantastic way to get involved.
LOCAL CHAPTERS COMING SOON!
A great opportunity for involvement is starting up a local chapter of Ogden C.A.R.E.S. and leading the charge in your own community, city, or state.
Please fill out the form above if you’re interested in heading up a chapter in your area!
Not interested in starting a local chapter? You can still help!
Do you know of any contacts we should be making or any fundraisers that we should consider organizing?