About Us

Learn More About The Foundation

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Our Mission

The mission for Ogden CARES is to empower affected families by providing resources and supporting research in pursuit of finding a cure. We strive to provide dedicated support to other families with Ogden Syndrome, raise awareness for this unique genetic mutation, and build a reciprocal network throughout the rare disease community.

Our Vision

To improve and support the lives of those affected by Ogden Syndrome (NAA10-related syndrome).


Once upon a time, four of our families met around a kitchen table while kids played loudly in the background, and they attempted to discuss what they want and need as parents on this extraordinary journey. The result of that conversation was the founding of the Ogden CARES, a rare disease research funding organization. They set the following goals in mind: