~~ a Foundation providing Community, Advocacy, Research, Education, and Support for Ogden Syndrome ~~

News & Events


Ogden Syndrome Day is just around the corner - October 10th!


This year, we are celebrating by

kicking off the first annual

10 Around the Track Walk 'n' Roll!


Click on the banner or link above to navigate to our Walk 'n' Roll headquarters, where you can join the race and/or make a donation to help fund critical research aimed at making a real and lasting impact on the lives of those living with or affected by Ogden Syndrome.



Spotlight Series

Meet Caroline!

Click the photo to learn more about

our sun-and-splash-loving girl

from the Sunshine state!

Ogden Syndrome: a global view