Ogden C.A.R.E.S.!

Who are we?

We are a nonprofit organization providing Community, Advocacy, Research, Education, and Support for Ogden Syndrome.

Ogden Syndrome and Genetic Facts

Latest Information

What does this mean for Ogden CARES and our patient community? We’ve got some work to do! We need to collect as much data as possible to make Ogden Syndrome a prime candidate for this research opportunity.

Families – stay up-to-date on our weekly RARE-X challenges and raffle drawings on both the Ogden Syndrome-NAA10 Family Support Group and the NAA10 Families Together pages on Facebook.

Spotlight Series


Brinley is 4 years old and lives in Texas with her parents, Todd and Kelly; her older sister, Jayla; and her twin brother, Wesley.

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Kamilla is 7 years old and lives in Texas with her parents, Stefanie and Johnny, and her sisters, Kinzley and Evelyn.

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Amelia (Millie) is 2 years old and lives in Washington State with her parents, Nikki and Gerrad, and her baby brother, Calvin.

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A Global View of Ogden Syndrome