Ogden C.A.R.E.S.!

Who are we?

We are a nonprofit organization providing Community, Advocacy, Research, Education, and Support for Ogden Syndrome.

Ogden Syndrome and Genetic Facts

Latest Information

RARE-X Enrollment Party

Ogden Families – you’re invited to the RARE-X ENROLLMENT PARTY!

Friday, January 27th, 11am Eastern

Spotlight Series

Brinley

Brinley is 4 years old and lives in Texas with her parents, Todd and Kelly; her older sister, Jayla; and her twin brother, Wesley.

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Kamilla

Kamilla

Kamilla is 7 years old and lives in Texas with her parents, Stefanie and Johnny, and her sisters, Kinzley and Evelyn.

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Amelia

Millie

Amelia (Millie) is 2 years old and lives in Washington State with her parents, Nikki and Gerrad, and her baby brother, Calvin.

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A Global View of Ogden Syndrome