Who are we?
We are a nonprofit organization providing Community, Advocacy, Research, Education, and Support for Ogden Syndrome.
Ogden Syndrome and Genetic Facts
It’s time again for our all inclusive, virtual fundraiser for Ogden Syndrome! Last year with the support of our community around the World we were able to smash our goal of $10,000 and went on to raise over $16,000 for Ogden Syndrome research!
This year we are shooting for the stars with an ambitious goal of $25,000 to get us one step closer to a treatment option for Ogden Syndrome!!!
It’s as Easy as 1,2,3!
1) From now until October 5th Create or Join a Team to support! You can see Teams that have already been created on a leaderboard at the bottom of the linked page!
2) Promote and encourage others to participate and give!
3) Walk, Run or Roll 10 Laps around the Track nearest you anytime between October 5th and October 15th 2023 in honor of Ogden Syndrome! Be sure to use #ogdensyndromewalknroll23 or tag Ogden CARES in your photos so we can follow along on your unique Walk ‘n’ Roll!
Together we can make a huge difference!