Camila Tomazella

Camila is the mother of Giovana, who was diagnosed with Ogden syndrome in 2025 at the age of eight months. She is a Brazilian lawyer and accountant, and a partner in a tax consulting practice at a law firm. Since her daughter's diagnosis, Camila has been passionate about the cause and bringing together more individuals with the same diagnosis. She believes that increasing the number of known diagnoses directly contributes to a deeper level of social awareness, enhancing the visibility of the condition, strengthening support networks for families, and consistently encouraging the development of and investment in research. She is also the direct contact for Latin American families.