Tri-Cities girl is one of 100 in the world with rare genetic disorder
https://keprtv.com/amp/news/local/tri-cities-girl-is-one-of-100-people-in-world-with-rare-genetic-disorder?fbclid=IwAR06Ac8GspGOt3s2xhFVh4w6YvtmJLp5IdnQx74GX6fr-CGai0X2ymcwOnY
We love Lucy: Souixland parents raise awareness for daughter’s rare disease
https://siouxlandnews.com/news/local/we-love-lucy-siouxland-parents-raise-awareness-daughters-rare-disease?fbclid=IwAR1K9gdeFxdVyNlg5N0xJn0S7E29XO-9NvtLjLXeTQJESmHrko-kM9lEFbI
Gliding Stars provides therapy on ice for people with disabilities
https://www.clickorlando.com/news/2019/03/14/gliding-stars-provides-therapy-on-ice-for-people-with-disabilities/
My Daughter Has Ogden Syndrome, and This Is What It’s Like
https://www.romper.com/p/my-daughter-has-ogden-syndrome-this-is-what-its-like-5835
