Raising awareness is key in the rare disease community.
Use your social media accounts as a way to get the word out! When you post pictures of your Ogden kiddo(s), be sure to mention Ogden C.A.R.E.S. in your text, use the hashtags #ogdencares and #ogdensyndrome, and/or tag us @ogdencares.
A great opportunity for involvement is starting up a local chapter of Ogden C.A.R.E.S. and leading the charge in your own community, city, or state.
LOCAL CHAPTERS COMING SOON!
Please reach out if you're interested in heading up a chapter in your area!
Not interested in starting a local chapter? You can still help!
Please share your great ideas - we would love to hear from you!
How can we can better meet the needs of the community?
Are there grants you know of that seem like a perfect fit for us?
Do you know of any contacts we should be making or any fundraisers that we should consider organizing?