Beginning from a very young age, even before reaching age one, children with Ogden Syndrome can begin to greatly benefit from a variety of types of therapy. Often, and especially as children get older, they may participate in more than one type of therapy on a regular basis, as either one-on-one sessions or co-treatments.
While it's true that every child progresses at their own pace, therapists can help our kids attain and keep their skills. Therapists can also be an important resource in determining if a child needs medical equipment or assistive technology and in providing justification of these needs to your insurance company.
Physical therapy (PT) helps to improve quality of movement, decrease or relieve pain, and help a patient achieve better health and quality of life. It is a non-invasive treatment that impacts physical function. For our patients, PT usually involves working on core strength, balance, sitting, crawling, walking, climbing, jumping, etc. Having a good PT will also be helpful for obtaining equipment our children need. This may include an adaptive transport stroller, wheelchair, stander, or gait trainer, as they can inform your decision and provide information regarding medical necessity.
Occupational therapy (OT) helps individuals develop fine motor, visual motor, and sensory motor skills through the therapeutic use of daily activities (occupations). For our children, this means helping our children participate in school and social situations by improving their functional ability to perform daily activities by adapting the environment and/or task to the individual. Daily activities may include feeding, dressing, toileting, writing, etc.
Speech and Language Therapy
A Speech and Language pathologist (SLP) helps identify how an individual is best able to communicate effectively by evaluating their verbal and nonverbal skills. This could be through object identification, picture identification, sign language, voice output switches, eye gaze, or with speech-generating devices that help an individual achieve maximum communication. Many speech therapists also provide feeding therapy.
Many of the individuals living with Ogden Syndrome have ocular impairments (impairments that affect the eye), and/or cortical/cerebral visual impairment (CVI ), a condition that impacts the visual pathways and visual processing centers of the brain. Vision services are provided by a Teacher of Students with Visual Impairments (TVI) who provides assessments, direct, and consultative services to ensure visual accessibility from birth-21 years of age.
Intensive therapy is a neurological and rehabilitative approach to physical, occupational, and/or speech therapy for which the patient attends and engages in therapy for more hours in a day, many days in a row. While traditional therapy occurs once or twice per week for 30-60 minutes, intensive therapy may be two or three hours per day, every day, for two or three weeks in a row. Many children make more progress towards their goals during these short but intense sessions than they might over a longer span of traditional therapy.
Complementary or Alternative Therapies
Hippotherapy is an approach to physical, occupational and speech therapy that is enhanced by the physical gait of the horse, improving neurological and physical functioning of the patient by providing sensory and motor input.
Aquatic therapy is an alternative to more traditional land therapy, allowing the child to move their body more freely while relaxing their muscles. Some of the benefits of aquatic therapy include improved strength, range of motion, postural support, and aerobic strength. Many of our kids love being in the water, so this is a great alternative or addition to traditional therapy.